Life

As my last post indicated things have been crazy the last few months. And unfortunately to add to the chaos everyone has been sick. Flu, colds you name it. Atticus is finally acting more like himself again but we continue to battle with Tristan's health. He is very prone to infections due to his surgery and an abnormality with bladder. He has basically had non stop infections since his surgery over a month ago. He had just finished a round of antibiotics Friday, only to wake up Saturday with another fever and signs of infection. We went ahead and started him on another round of medicine and he woke up today with the flu. My heart just breaks for him. He is so miserable and has been through so much these last several weeks. We talked to his dr about the concerns we have regarding issues with his last surgery. His dr confirmed that he would indeed need additional surgery. Unfortunately this surgery could end up not working also meaning we are back at square one. he will have his next surgery in about 5 months and if it results as this last one did he will need a much more intense surgery to correct the issue involving a mouth graft and 2 more surgeries at minimum. And unfortunately he will still have the abnormality with his bladder that will need to be fixed. This one will be tricky due to location. We had hoped this issue would absolve on its own but it has not and is now one of the main cause for the infections he is having. This is something we had hoped we could push aside for a number of years and deal with once his first procedure was complete. But it is rearing its ugly head and just adding to the current issues.

It's all so overwhelming but I am continually comforted by the tender mercies of the lord and the continued perspective he throws my way. At times I just want to break down and then I am reminded that these issues have a clear cut path to an end result, even though complications have arrived Tristan's quality of life should not be compromised by these issues so long as they are resolved. I have often times looked back at my blog posts while I was pregnant with the boys and I am reminded of how much worse things had seemed at one time. This is the same little boy who I was told had the possibility of being born deaf and or blind, and possibly mentally retarded. He is none of those things and for that I could never be more grateful. And so when faced with these specific challenges I at times need to remind myself how incredibly blessed he truly is, and how blessed we are to be parents to such a special little boy who makes me smile everyday! As do his brother and sister. I know these last few weeks have been hard and we have yet a long path before us to get Tristan where he needs to be but such is life and things could always be so much worse.